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Showing posts with label TSW Syndrome. Show all posts
Showing posts with label TSW Syndrome. Show all posts

Monday, February 6, 2023

February 3 is TSW Awareness Day and ITSAN’s 11 year anniversary as an incorporated nonprofit! We have come so far in the battle for recognition, accountability, and prevention. What can you do? We need your help to get Topical Steroid Withdrawal Syndrome officially recognized by your state, to help promote research and provide support and protection for TSW sufferers and their families! Join us on Wednesday, February 15, at 8:30pm EST, as Kelly Barta, ITSAN Executive Board member, shares how to connect with your legislators. Kelly will provide the tools you need to get a TSW resolution passed in your state or province. We know that TSW sufferers and caregivers often struggle to be heard and understood. Learn how YOU can make a difference! TSW Advocacy Training Wednesday, February 15 8:30pm-9:30pm EST Register in advance for the meeting here: https://www.itsan.org/advocate/ After registering, you will receive a confirmation email containing information about joining the meeting. Thank you! #tswawarenessday #tswadvocacytraining #endtsw #preventable #thisisnoteczema #topicalsteroidaddiction #tsa #topicalsteroidwithdrawal #tsw #redskinsyndrome #rss #topicalsteroidwithdrawalsyndrome #tsws #itsan #dermatology

Thursday, September 1, 2022

 The early vision and longing of us vets of TSW advocacy was to see this largely ignored Topical Steroid Withdrawal Syndrome to be recognized and go viral. ITSAN.org and everyone who ever shared their story in order to slow and eventually stop this train of suffering can now see the fruit manifesting from those seeds after 10 hard years of this labor of love and pain. Thank you Kelly Barta for sharing your story "To Eczema With Love" as hundreds of others have done, baring their soul, emotions and skin to the whole world in order to bring the burning skin community and world hope and help! Well done my comrade. 👏