Thursday, August 30, 2018

Thank you Dr. Sheary for Joining the Battle to Expose Steroid Induced RSS

Dr. Belinda Sheary has been working hard in her medical skills to expose the largely unknown iatrogenic disease steroid induced Red Skin Syndrome or Topical Steroid Withdrawal.

This study is the recent results of her study of several patients. I want to publicly thank her and for the many emails we've shared to work together on this preventable disease!

Wednesday, February 15, 2017

Australian Dr. Sheary Publishes New Red Skin Syndrome Study

Australian doctor speaking out about topical steroid-induced dermatitis! Here is another doctor who has seen topical steroid withdrawal firsthand and decided to join the awareness cause! Yay for Dr. Sheary! Please do add to your cited info files and share with everyone who needs it. Let your voices be heard in an intelligent way so the medical community understands there truly is a problem and not the silly notion of "steroid phobia." 

Australian Study of Red Skin Syndrome

Tuesday, March 15, 2016

Indian Dermatologists Rejoice as India Bans Several Steroid Combination Drugs

I congratulate the Indian doctors for their diligent work in raising awareness of topical steroid adverse effects as well and the combination of steroids and antibiotics or antifungals. Good for you! May our future children never have to suffer with these conditions!

Several dermatologists from India have been crusading to make their citizens and medical community aware of the serious side-effects of topical steroids being overused or without a prescription.There is now more and more evidence arising from within the medical community that topical steroid indeed have serious side-effects and when combined with other medication, become even more risky to use.

ITSAN has been in communication with some of these doctors and have gotten a thumbs up of support as well in return for our concerted efforts to raise awareness of the potential risks of using topical steroids without the direction of a supportive doctors who believes and understands the side-effects of this drug.

Dr. Koushik Lahiri, a prominent Indian Dermatologist, was appointed two years ago by Dr. Deepak Parikh, the President of Indian Association of Dermatologists, Venereologists and Leprologists(IADVL) as the Chairperson of a task-force to deal with the menace of topical steroid misuse and abuse. His concerted efforts along with other doctors has proven to be very effective in the effort to protect their citizens from "Topical Steroid-Dependent Face TSDF." A condition that has been escalating in India citizens.;year=2014;volume=5;issue=4;spage=416;epage=425;aulast=Coondoo

 "Misuse of TS on the face is seen all over India and its incidence appears to be increasing rapidly. TSDF has also been described under various names like steroid addiction, dermatitis rosaceaformis steroidica and red face syndrome. In this condition after long term application of TS on the face, there is severe rebound erythema, burning and scaling on the face on attempting to stop the application of TS.[2]"

From now on these following steroid combinations are BANNED WITH IMMEDIATE EFFECT by the Indian government.

"1. Clobetasol + Ofloxacin + Miconazole + Zinc Sulphate 2. Clobetasole + Gentamicin + Miconazole + Zinc Sulphate 3. Clobetasol + Ofloxacin + Ketoconazol + Zinc Sulphate 4. Clobetasol + Gentamicin + Tolnaftate + lodochlorhydroxyquinone + Ketoconazole 5. Clobetasol + Neomycin + Miconazole + Clotrimazole 6. Clobetasol Propionate + Ofloxacin + Ornidazole + Terbinafine 7. Clobetasol + Neomycin + Miconazole + Zinc Sulphate 8. Betamethasone + Fusidic Acid + Gentamycin + Tolnaftate + lodochlorhydroxyquinoline 9. Betamethasone + Gentamicin + Tolnaftate + lodochlorhydroxyquinoline 10. Betamethasone + Neomycin + Tolnaftate + lodochlorohydroxyquinoline + Cholorocresol 11. Betamethasone + Gentamycin + Zinc Sulphate + Clotrimoazole + Chlorocresol 12. Ciprofloxacin + Fluocinolone + Clotrimazole + Neomycin + Chlorocresol 13. Beclomethasone + Clotimazole + Neomycin + lodochlorohydroxyquinone 14. Beclomethasone + Clotrimazole + Gentamicin + lodochlorhydroxyquinoline 15. Beclomethasone Diproprionate + Neomycin + Tolnaftate + lodochlorhydroxyquinoline +Chlorocresol"

"Doctors and health experts say the spread and misuse of antibiotic combinations may be contributing to antibiotic resistance in India. Some super-bugs, which are strains of bacteria that have become resistant to antibiotics, have been found in patients who traveled from India to countries including the United States and Britain."

Monday, August 17, 2015

Feel Like Chillin that Hot, Itchy Skin?

Red Skin Syndrome has the name 'red' in it for a reason, you burn at some point and the degrees of it vary but it is hot! I was always using about 10 ice packs to keep my burning, hot skin cooled when enduring topical steroid withdrawal in the early months. Then I needed ice for the insane itch as well. My sleep was the worst as I would lay there and just burn like I had been in the sun all day and unlike a sunburn that clears in a few days, this lasted about 4 months. The itch lasted much longer and when I needed quick relief, I reached for my trusty ice pack and placed it right on the area itching the worst. If I drove my car anywhere in the summer, I had to lay ice packs on my lap as my AC was broken and it was awful to go somewhere and suddenly get an itch attack while driving!

One time I went to my grandson's birthday party which was in the summer on a hot 90 degree, humid day.  I am a very dedicated "Nana" and would not miss my grandchild's party unless I was on death watch so I went which was about a 20 minute drive. About halfway there my whole body got too hot even with all the windows down and I began to itch violently all over my body like ants were crawling on me and biting! I pushed the gas pedal down and hit almost 90 on the highway without realizing it while scratching one -handed to get some relief as you cannot not touch your skin when it feels literally like ants biting or needles poking you everywhere!

So now here comes a police car speeding up on me while I'm doing my best to look sane and drive! He walks up and I'm literally having an itch fit which probably looked like an epileptic fit. ARGH...Now I have the greatest respect for our law enforcement officers but he was young and cocky, not the least bit understanding. While trying to respectfully scratch like a lady, I'm sweating and getting worse while trying to explain to him that I am in topical steroid withdrawal in speed sentences which probably did not sound too good with the word "withdrawal" in the 20 second explanation. Then I quickly add in my "speedonic" language, how the heat is making me worse and sitting there talking to him is not helping!

While staring coldly at me scratching non-stop, he says I need to get my air fixed after I just told him it was too expensive, but he acted like money was not a big deal for this repair. He then asked for my id and car info and went back to his patrol car while I fought the urge to scream and ask for an escort to my destination. I could tell he was watching me writhe around like a crazy person while scratching and sweating. It was hell to say the least and anyone reading this who is in the process of or has endured TSW knows exactly what I'm describing here!

He comes back and says "get that air fixed" and lets me go without a ticket. Yay for pity on the insane itchers! I didn't care at that point, just needed to get going so I could run into my daughter's air conditioned house and hide in her bathroom for a bit. My poor grandson got a "hi honey, happy birthday" while I ran into their bathroom for a reprieve from my itch hell. I did not stay long and learned after that to do Facetime with my grandchildren more as RSS disrupts your life in so many ways.

Needless to say, if I had seen this handy ice vest, I would have bought one and wore it all the time except for my bath times! This could be useful even after Red Skin Syndrome like a hot ball game day, working in the garden or sitting at a parade! I am sharing and hope someone will benefit from it. Keep cool! :)
Click on pic for more info

Wednesday, May 27, 2015

ITSAN Got a New Spring Makeover!

ITSAN just sprung into spring with a remodeled, brand new look and more helpful info about Red Skin Syndrome!

If you want to show your doctors what withdrawal from topical steroids looks like, this is the site to show them as the new gallery has a great new look and dates of the TSW on the pics when you scroll over them. Something needed for a long time.

Each page offers organized, informative information without being diagnostic or medically advising and there are quotes from different doctors that were gladly offered to ITSAN as support for RSS sufferers.

A big thanks to the site project manager as he is highly skilled and appreciated!

You can read and see a whole lot more in the ITSAN spring newsletter here! ITSAN 2015 Spring Newsletter

Monday, April 6, 2015

Safer Non-Steroid Treatment for Nail Psoriasis

National Psoriasis Foundation is well aware of the effective topical steroid drug but also acknowledges the damages it may cause. The vitamin D based ointment is being researched more but showed higher percentages of effectiveness than steroids. As National Eczema Association just published their quest for safer eczema treatments, so does the NPF. I hope that this will increase the awareness of Red Skin Syndrome as well and new methods of treatment for many skin ailments will be offered first rather than topical steroids.

Safer Nail Psoriasis Treatment

Tuesday, March 3, 2015

Miss Kitty Rides Again!

I love this Miss Kitty lady who is well known in the ITSAN circuit because of her brilliant ability to communicate well,  relate to and support hurting RSS warriors, study, research,  write, do graphs and comparisons, post funny pics on her blog and just downright entertain us!

I'm geeked that she along with another RSS warrior are helping to build bridges with the medical community on this mysterious condition called Topical Steroid Withdrawal or Red Skin Syndrome. We are just over 3 years old as a nonprofit with a mission to raise lots more awareness and build solid bridges of communication and dialogue with the other skin disease organizations. 

I commend Jo and Wendy for their time well spent at the Centre for Evidence Based Dermatology (CEBD) as guest panel patients. Good job and teamwork ladies, keep it going!

Check out her great blog post here!