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Showing posts with label eczema. Show all posts
Showing posts with label eczema. Show all posts

Wednesday, February 5, 2020

My Topical Steroid Withdrawal Syndrome Story

I wrote about my own topical steroid withdrawal syndrome (TSWS) journey about 8 years ago. I will never forget the trauma and intensity of that 27 month, dark night in my life. I am committed to telling my story everywhere I go and to help raise awareness of TSWS and to help prevent this preventable travesty in other people's lives. Hubpages recently promoted my article to the "Patient's Lounge" which will raise views and reach more people! Yay! Read my story and see my pics here.

Tuesday, March 3, 2015

Miss Kitty Rides Again!

I love this Miss Kitty lady who is well known in the ITSAN circuit because of her brilliant ability to communicate well,  relate to and support hurting RSS warriors, study, research,  write, do graphs and comparisons, post funny pics on her blog and just downright entertain us!

I'm geeked that she along with another RSS warrior are helping to build bridges with the medical community on this mysterious condition called Topical Steroid Withdrawal or Red Skin Syndrome. We are just over 3 years old as a nonprofit with a mission to raise lots more awareness and build solid bridges of communication and dialogue with the other skin disease organizations. 

I commend Jo and Wendy for their time well spent at the Centre for Evidence Based Dermatology (CEBD) as guest panel patients. Good job and teamwork ladies, keep it going!

Check out her great blog post here!   http://misskittydefeatseczema.blogspot.com/2015/03/we-attended-eczema-patient-panel-event.html